2020-12-08 Meeting

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Agenda

Guiding Goal: Alignment between multi-stakeholder governance providers (Data Operators [EU terminology]) and Ecosystem governance providers (as defined by ToIP)

Welcome (Paul—2.5 mins)
Newcomer Introductions (WG—2.5 mins)
Task Force Updates (WG, 5 mins)
- Imaging TF (Scott)
- Medical Information TF (Scott)
- OCA-FHIR FG (John)
- Notice & Consent TF (Mark)
- Privacy & Risk TF (Jan)
FHIR and OCA: Transformation of OCA artifacts from/to FHIR resources (John/Mukund/Burak—25 mins)
- Ref.: https://lf-toip.atlassian.net/wiki/display/HOME/OCA-FHIR+Working+Notes
Overview of EU’s proposed Data Governance Act (Paul/Jan—25 mins)
- The broad strokes of the proposed DGA (Jan)
  - Ref.: https://ec.europa.eu/digital-single-market/en/news/proposal-regulation-european-data-governance-data-governance-act
- ToIP Ecosystem governance = Multi-stakeholder governance (Paul)

Logistics and miscellaneous (Paul—5 mins)
- News from the Operations Team
  - Nick Nayfack (Group representative)
- Leadership positions
  - @Paul Knowles (Chair) / @John Wunderlich (Vice-chair)
- Meeting schedule
  - OCA-FHIR FG bi-weekly meeting
    - Thursday, December 10th @ 08:00 US PT / 17.00 CET
    - Zoom link: https://zoom.us/j/93406719136?pwd=SUozZHBQM0N5TUhYMHJqL0ZQM3l3Zz09
  - Notice & Consent TF bi-weekly meeting
    - Thursday, December 10th @ 08:30 US PT / 17.30 CET
    - Zoom link: https://zoom.us/j/92346573961?pwd=RmZHNnQxS2lya3NCMHZTVXYra3Rrdz09
  - Semantics Domain WG weekly meeting
    - Tuesday, December 15th @ 09:00 US PT / 18.00 CET
    - Zoom link: https://zoom.us/j/93406719136?pwd=SUozZHBQM0N5TUhYMHJqL0ZQM3l3Zz

Meeting Notes

Recording

Participants (Name / Location / Time zone / Affiliation):

@Paul Knowles / Basel, Switzerland / CET / Human Colossus Foundation
@Former user (Deleted) / Stockholm, Sweden / EST / Linaltec
@Daniel Bachenheimer / Metro Washington, DC / EST / Accenture
@John Walker / Bay Area, CA, USA / PST / SemanticClarity, CCI
@John Wunderlich / Toronto, Canada / EST / JLINC Labs
@Mukund Parthasarathy / Bay Area, USA / PDT / SemanticClarity
@Burak Serdar / Denver, CO, USA / MST / Cloud Privacy Labs
@Carly / Guelph, Canada / EST / University of Guelph, Waterloo Centre of Microbial Research
@Former user (Deleted) / Dorset, UK / GMT / Kantara Initiative
@Jim StClair / Biloxi, MS, USA / CDT / Lumedic
@Ken Adler (Deactivated) / Oakland, CA, USA / PST / ThoughtWorks
@Kevin Dean / Toronto, Canada / EDT / GS1 Canada
@Mark Lizar / Toronto, Canada / EDT / Open Consent Group
Philippe Métais / Paris, France / CET / evidence.fyi
@Philippe Page / Geneva, Switzerland / CET / Human Colossus Foundation
@Salvatore D'Agostino / Boston, MA, USA / EST / Open Consent Group
@sankarshan / Bengaluru, India / IST / Dhiway
@Scott Warner / Bend, OR, USA / PST / Secours.io
@Scott Whitmire / Scottsdale, AZ, USA / MST / Mayo Clinic
Subra Subramaniam / Bay Area, CA, USA / PST / CyberKnowledge
Nick Nayfack / San Francisco, CA, USA / PDT / Team Ikigai

Leadership positions:

Semantics WG
- Chair : @Paul Knowles (Human Colossus Foundation)
- Vice-chair : @John Wunderlich (JLINC Labs)
- Operations Team Group Representative : Nick Nayfack (Team Ikigai)

Medical Information TF
- Chair volunteers
  - @Mukund Parthasarathy (SemanticClarity)
  - @John Walker (SemanticClarity)
- Vice-chair volunteers

OCA-FHIR FG
- Chair volunteers
- Vice-chair volunteers

Notice & Consent TF
- Chair volunteers
  - @Mark Lizar (Open Consent Group)
  - @Salvatore D'Agostino (Open Consent Group)
- Vice-chair volunteers

Privacy & Risk TF
- Chair volunteers
  - @Former user (Deleted) (Linaltec)
- Vice-chair volunteers

Imaging TF
- Chair volunteers
- Vice-chair volunteers