2020-12-08 Meeting

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Agenda

Guiding Goal: Alignment between multi-stakeholder governance providers (Data Operators [EU terminology]) and Ecosystem governance providers (as defined by ToIP)

• Welcome (Paul—2.5 mins)
• Newcomer Introductions (WG—2.5 mins)
• Task Force Updates (WG, 5 mins)
  • Imaging TF (Scott)
  • Medical Information TF (Scott)
  • OCA-FHIR FG (John)
  • Notice & Consent TF (Mark)
  • Privacy & Risk TF (Jan)

• FHIR and OCA: Transformation of OCA artifacts from/to FHIR resources (John/Mukund/Burak—25 mins)

  • Ref.: https://lf-toip.atlassian.net/wiki/display/HOME/OCA-FHIR+Working+Notes

• Overview of EU’s proposed Data Governance Act (Paul/Jan—25 mins)

  • The broad strokes of the proposed DGA (Jan)

    • Ref.: https://ec.europa.eu/digital-single-market/en/news/proposal-regulation-european-data-governance-data-governance-act

  • ToIP Ecosystem governance = Multi-stakeholder governance (Paul)

• Logistics and miscellaneous (Paul—5 mins)

  • News from the Operations Team

    • Nick Nayfack (Group representative)
  • Leadership positions
    • Paul Knowles (Chair) / John Wunderlich (Vice-chair)
  • Meeting schedule

    • OCA-FHIR FG bi-weekly meeting

      • Thursday, December 10th @ 08:00 US PT / 17.00 CET
      • Zoom link: https://zoom.us/j/93406719136?pwd=SUozZHBQM0N5TUhYMHJqL0ZQM3l3Zz09
    • Notice & Consent TF bi-weekly meeting
      • Thursday, December 10th @ 08:30 US PT / 17.30 CET
      • Zoom link: https://zoom.us/j/92346573961?pwd=RmZHNnQxS2lya3NCMHZTVXYra3Rrdz09
    • Semantics Domain WG weekly meeting
      • Tuesday, December 15th @ 09:00 US PT / 18.00 CET
      • Zoom link: https://zoom.us/j/93406719136?pwd=SUozZHBQM0N5TUhYMHJqL0ZQM3l3Zz

Meeting Notes

Recording

Participants (Name / Location / Time zone / Affiliation):

• Paul Knowles / Basel, Switzerland / CET / Human Colossus Foundation
• Former user (Deleted) / Stockholm, Sweden / EST / Linaltec
• Daniel Bachenheimer / Metro Washington, DC / EST / Accenture
• John Walker / Bay Area, CA, USA / PST / SemanticClarity, CCI
• John Wunderlich / Toronto, Canada / EST / JLINC Labs 
• Mukund Parthasarathy / Bay Area, USA / PDT / SemanticClarity
• Burak Serdar / Denver, CO, USA / MST / Cloud Privacy Labs 
• Carly / Guelph, Canada / EST / University of Guelph, Waterloo Centre of Microbial Research  
• Former user (Deleted) / Dorset, UK / GMT / Kantara Initiative 
• Jim StClair / Biloxi, MS, USA / CDT / Lumedic
• Ken Adler (Deactivated) / Oakland, CA, USA / PST / ThoughtWorks
• Kevin Dean / Toronto, Canada / EDT / GS1 Canada 
• Mark Lizar / Toronto, Canada / EDT / Open Consent Group
• Philippe Métais / Paris, France / CET / evidence.fyi
• Philippe Page / Geneva, Switzerland / CET / Human Colossus Foundation
• Salvatore D'Agostino / Boston, MA, USA / EST / Open Consent Group
• sankarshan / Bengaluru, India / IST / Dhiway 
• Scott Warner / Bend, OR, USA / PST / Secours.io
• Scott Whitmire / Scottsdale, AZ, USA / MST / Mayo Clinic 
• Subra Subramaniam / Bay Area, CA, USA / PST / CyberKnowledge
• Nick Nayfack / San Francisco, CA, USA / PDT / Team Ikigai

Leadership positions:

• Semantics WG
  • Chair : Paul Knowles (Human Colossus Foundation)
  • Vice-chair : John Wunderlich (JLINC Labs)
  • Operations Team Group Representative : Nick Nayfack (Team Ikigai)

• Medical Information TF
  • Chair volunteers
    • Mukund Parthasarathy (SemanticClarity)
    • John Walker (SemanticClarity)
  • Vice-chair volunteers

• OCA-FHIR FG
  • Chair volunteers
  • Vice-chair volunteers

• Notice & Consent TF
  • Chair volunteers
    • Mark Lizar (Open Consent Group)
    • Salvatore D'Agostino (Open Consent Group)
  • Vice-chair volunteers

• Privacy & Risk TF
• Chair volunteers
  • Former user (Deleted) (Linaltec)
• Vice-chair volunteers

• Imaging TF
  • Chair volunteers
  • Vice-chair volunteers