2022-11-29 DMRWG Meeting Notes

2022-11-29 DMRWG Meeting Notes

Meeting Date

Nov 29, 2022 The DMRWG meets bi-weekly on Tuesdays at 12:00-13:00 PT / 16:00-17:00 UTC. Check the ToIP Calendar for meeting dates.

Zoom Meeting Link / Recording

Attendees

  • @Neil Thomson 

  • @Carly

  • @Burak Serdar

  • @Zaida Rivai  

Main Goal of this Meeting

Presentation by Burak Serdar on Interoperability with Layered Schemas

Agenda Items and Notes (including all relevant links)

Time

Agenda Item

Lead

Notes

5 min

  • Start recording

  • Welcome & antitrust notice

  • Introduction of new members

  • Agenda review

Chairs

  • Antitrust Policy Notice: Attendees are reminded to adhere to the meeting agenda and not participate in activities prohibited under antitrust and competition laws. Only members of ToIP who have signed the necessary agreements are permitted to participate in this activity beyond an observer role.

  • New Members:

5 mins

Review of action items from the previous meeting

Chairs

Presentations: 

  • Burak Serdar (this meeting)

  • James Schoening IEEE Ontologies (proposed for next meeting on Dec 13 on Ontologies and a related product)

45 mins

Presentation: Interoperability with Layered Schemas

@Burak Serdar 

Burak has been using his "layered schema" extended metadata model as a core component to provide data transformations of medical data for different analytic purposes for the last 18 months.  

The worldwide medical data industry has been striving for data standards for capturing, transforming, and analyzing data for many years. This has resulted in multiple standards, plus several different approaches to harmonizing those standards, including building mental models, vocabularies, and ontologies (Wikipedia) - which is an attempt to model data, relationships, and concepts, plus apply categorization and classification.

The reality is that every attempt at a newer, better, more comprehensive standard just creates another standard. Active existing standards will not be abandoned as there is too much invested. The only pragmatic solution is a data exchange/transformation approach that deals with multiple standards and supporting information. An example of this in the medical industry in one application that Burak is supporting is the Observational Health Data Sciences and Informatics (OHDSI) OMOP model/ontology, which Burak features in his current work.

As shown in the OMOP approach, the solution to multiple standards is to recognize the commonality from a data semantics (meaning, purpose vs. data structure) perspective and build an abstract data model (a meta-model), which ideally has a single structure into which different standards can be mapped.

Other complications include different data schema representations (RDP, JSON-LD, XML, JSON, relational, (property) graph), and local variations in data schema implementation.

Another lesson learned is that the destination purpose - what type of analytics are to be done - are a bigger driver of the "output" format for the data transformation than to a single data schema structure for all analytic tasks.

While data (everywhere) will continue to evolve, the right abstract data model can adapt and simplify transformation for current and future analytic purposes.

The flip side is that if developers of data objects (e.g., VCs) within a given domain (medical, travel, banking) do not work from a common set of data concepts, then data interoperability and transformations can become much more complex (approaching N2 if no two data sources have the same data structure/schema), or even impossible if the data is conceptually different for the same common purpose.

For example(1), COVID-related VCs, which people present to enter a Country.

  • Country A - bases COVID health on medical symptoms and blood tests within 72 hours of travel.

  • Country B - bases COVID health on COVID Vaccination within 30 days.

The data is completely different, as are the rules on what how to evaluate the answer to the question - Are you medically fit to enter Country (X)?

The VC data and evaluation rule(s) are incompatible, so the transformation is impossible; interoperability fails. 

(1) the COVID health example is purely illustrative, but this type of semantic difference was evident in many countries in the July to Nov 2020 timeframe. It's a bit ironic that in 2022, due to a lack of agreement on electronic COVID certificates and their data, we've all been using paper copies or PDF COVID vaccination documents for the last 18 months.

5 mins

  • Review decisions/action items

  • Planning for the next meeting 

Chairs

The next meeting (Tues, Dec 13, 2022) is planned to be a presentation from James Schoening. The alternative will be a presentation on a generic ToIP data exchange model, with support for DIF Data Agreements (for which there is a new spec proposal from igrant.io), which folds in Notice, and Receipts 

Given that there is likely no meeting in the Christmas to New Years period (Dec 27), the next meeting post-Christmas is Jan 13, 2023

Screenshots/Diagrams (numbered for reference in notes above)

The above is an example of the abstract model that the OMOP medical common model (note all the different standards used), which is an actively used interoperability model which supports combining data from all of the listed standards into a single queryable data structure