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2025-01-23 Pediatric Data Spaces

2025-01-23 Pediatric Data Spaces

Owned by Carly
Last updated: Jan 24, 2025
2 min read

Meeting Schedule

  • Bi-Weekly at 8:00-9:00 am PDT / 11:00-12:00 am EDT / 15:00 – 16:00 UTC / 17:00 - 16:00 CEST

Attendees

@sankarshan

@Eric Drury

@Carly Huitema

@Steven Milstein

Main Goal of this Meeting

Pediatric Health Data Space by Antti Kettunen

In order to enable scalable secondary use of healthcare data, extensive challenges in ecosystem governance, identity, business models and privacy protection need to be solved scalably. European pediatric hospitals are coming together in the EU/UKRI -funded PHEMS project to develop a digital ecosystem that solves the challenges of research and benchmarking in Healthcare domain. In this session I present the design of Pediatric Health Data Space, including approaches to governance, tech, business, and digital trust.

Title of Event: Pediatric Health Data Space
Event Date: Thursday 23rd January 2025
Event Time:  21:30 IST / 16:00 UTC / 08:00 PDT / 11:00 EST
ZoomLink: LFX Meetings

 

Time

Agenda Item

Lead

Notes

5 min

  • Start recording

  • Welcome & antitrust notice

  • Introduction of new members

  • Agenda review

Chairs

  • Antitrust Policy Notice: Attendees are reminded to adhere to the meeting agenda and not participate in activities prohibited under antitrust and competition laws. Only members of ToIP who have signed the necessary agreements are permitted to participate in this activity beyond an observer role.

  • New Member Introductions:

1 min

Announcements

Chairs and members

  1. EGWG updates, topics, and announcements from the community:

    1. SC approval of our name change and charter.

    2. Feb 6 - Switchchord

    3. Feb 20 - Trustchain

    4. Mar 5 - Human Colossus

40 min

Presentation

Antti Kettunen

 

 

 

 

 

5 min

  • Review decisions/action items

  • Planning for the next meeting 

Chairs

 

Recording

link

Notes

Slides

 

 

Decisions

  •  

Action Items

 

Coming up