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Agenda

Guiding Goal: Master Mouse Model (MMM)

Welcome (Paul—2.5 mins)
Newcomer Introductions (WG—2.5 mins)
Task Force Updates (WG—5 mins)
- Health Care TF (Scott)
- FHIR FG (John)
- Notice & Consent TF (Mark)
- Privacy & Risk TF (Jan)
- Storage & Portability TF (Christoph)
Presentation: Master Mouse Model, a roadmap to a Dynamic Data Economy (DDE) (Paul—25 mins)
- Purpose-based Service Providers
  - A company's "why" is a collective sense of purpose that reflects the company's merit, trustworthiness, and authenticity. It is the feeling the company wants their customers to experience when they engage with proprietary products and services – the identity that their customers want to align with.
  - Establishing authentic communication channels in a peer-to-peer networking environment provides the basis to initiate transaction flows for consented data capture and data sharing between an organisation and the data subject (or a delegate/guardian acting on behalf of the data subject).
  - Ref.: https://blog.frontrunnerfilmsllc.com/why-your-why-should-be-the-heart-of-brand-purpose-based-marketing/
- Insights-based Service Providers
  - The value of data insights is not only to learn and enable validated decision-making, but also to make everybody in the company’s ecosystem ‘move’ in the same direction. As today’s world is volatile, uncertain, complex and ambiguous, insights need to be generated continuously rather than once in a while.
  - Data insights gained from analysing sets of information that pertain to a given topic (or situation) enables businesses to make better-informed decisions, reducing the risk that comes with trial-and-error testing methods. Semantic harmonisation enables criteria searches on structured data from multiple sources, providing the basis to initiate a transaction flow for consented data access between the requesting party and the data governance authority (acting on behalf of consenting data subjects).
  - Ref.: https://philipvandenberg.com/2020/04/08/insights-based-marketing/
- Data Governance Authorities
  - Working together as a consortium to steer data governance and prioritise standards to facilitate data sharing between participating members provides an ecosystem for shared knowledge in pursuit of a common goal or objective.
- Synergy with decentralised data governance
- Synergy with decentralised data management
- ToIP Ecosystems
  - The following ecosystems could do with our help with defining data management architecture and data governance frameworks ...
Discussion: CDC COVID-19 Vaccination Reporting Specification in OCA format (Paul—20 mins)

CDC Vaccination Reporting Schema Specification
- Ref.: https://www.cdc.gov/vaccines/covid-19/reporting/requirements/index.html
- (Specification attached below)
OCA version of CDC Vaccination Reporting Schema Specification
- (Specification attached below)
OCA rendered schema
- Ref.: https://editor.oca.argo.colossi.network

Logistics and miscellaneous (Paul—5 mins)
- News from the Operations Team
  - Nick Nayfack (Group representative)
- Meeting schedule
  - Inputs Domain Group weekly meeting
    - Wednesday, January 27th @ 09:00 US PT / 18.00 CET
    - Zoom link: https://zoom.us/j/93406719136?pwd=SUozZHBQM0N5TUhYMHJqL0ZQM3l3Zz
  - Storage & Portability TF bi-weekly meeting
    - Monday, February 1st @ 09:00 US PT / 18.00 CET
    - Zoom link: https://zoom.us/j/96177500988?pwd=cDVNS2JzN1YxYXhiUVprWlM0OGQxQT09
  - Semantic Domain Group weekly meeting
    - Tuesday, February 2nd @ 09:00 US PT / 18.00 CET
    - Zoom link: https://zoom.us/j/93406719136?pwd=SUozZHBQM0N5TUhYMHJqL0ZQM3l3Zz
  - FHIR FG bi-weekly meeting
    - Thursday, February 4th @ 08:00 US PT / 17.00 CET
    - Zoom link: https://zoom.us/j/93406719136?pwd=SUozZHBQM0N5TUhYMHJqL0ZQM3l3Zz09

Meeting Notes

Recording

Participants (Name / Location / Time zone / Affiliation):

Paul Knowles / Basel, Switzerland / CET / Human Colossus Foundation
Jay Fischbach / Toronto, Canada / EST / KABN
chris_raczkowski / Calgary, Canada / MST / Sovrin Foundation
Daniel Bachenheimer / Metro Washington, DC / EST / Accenture
John Wunderlich / Toronto, Canada / EST / JLINC Labs
Mark Lizar / Toronto, Canada / EST / Open Consent Group
Bart Cant / Charlotte, NC, USA / EST / Rethink Ledgers
Burak Serdar / Denver, CO, USA / MST / Cloud Privacy Labs
Carly / Guelph, Canada / EST / University of Guelph, Waterloo Centre of Microbial Research
Former user (Deleted) / Stockholm, Sweden / CET / Linaltec
Jim StClair / Biloxi, MS, USA / CST / Lumedic
Karl Kneis / Cliffside Park, NJ, USA / EST / idRamp
Ken Adler (Deactivated) / San Francisco, CA / PST / ThoughtWorks
Mike Bennett (Deactivated) / Wales, UK / GMT / Freelance Ontologist
Neil Thomson / Ottawa, Canada / EST / QueryVision
Subra Subramaniam / Bay Area, CA, USA / PST / CyberKnowledge
Philippe Métais / Paris, France / CET / evidence.fyi
Philippe Page / Geneva, Switzerland / CET / Human Colossus Foundation
John Walker / Bay Area, CA, USA / PST / SemanticClarity, CCI
Salvatore D'Agostino / Boston, MA, USA / EST / Open Consent Group
Steven Milstein / Montreal, Canada / EST / Colab Ventures

Leadership positions:

Inputs and Semantics WG
- ISWG Lead : Paul Knowles (Human Colossus Foundation)
- Operations Team Group Representative : Nick Nayfack (Team Ikigai)
- Inputs Domain Group
  - Chair : Robert Mitwicki (Human Colossus Foundation)
  - Vice-Chair : Sam Smith (ProSapien)
- Semantic Domain Group
  - Chair : Paul Knowles (Human Colossus Foundation)
  - Vice-chair : John Wunderlich (JLINC Labs)

Medical Information TF
- Chair volunteers
  - Mukund Parthasarathy (SemanticClarity)
  - John Walker (SemanticClarity)
- Vice-chair volunteers

Notice & Consent TF
- Chair volunteers
  - Mark Lizar (Open Consent Group)
  - Salvatore D'Agostino (Open Consent Group)
- Vice-chair volunteers

Privacy & Risk TF

Chair volunteers
- Former user (Deleted) (Linaltec)
Vice-chair volunteers

Storage & Portability TF

Chair volunteers
- Christoph Fabianek (OwnYourData)
Vice-chair volunteers

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