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The complex ecosystem where manifold transactions can be automatically enabled by smart contracts contributes, at least in principle, to establish greater transparency about data use towards the many parties involved. However, the mere fact of building such a verifiable and traceable architecture does not automatically translate into understandable communications, easily applicable instructions and smooth transactions for human beings. For instance, informed consent is hindered by the complex mix of legal, medical and technical information through which participants need to orient themselves when they make decisions about data sharing permissions. In data-driven environments, the way options are designed and presented can stimulate privacy-preserving practices or, on the contrary, unwanted data disclosure. This talk will address some challenges and discuss possible solutions currently experimented in consent design.
Links and Resources
Paper, Conciseness, interest, and unexpectedness: user attitudes towards infographic and comic consent mediums (2022)
Paper, When Design Met Law: Design Patterns for Information Transparency (2019)
Paper, Proactive Legal Design for Health Data Sharing Based on Smart Contracts
Paper, Transparency by design in data-informed research: A collection of information design patterns (2020)